read the full post at my sister’s blog, if i had a photograph

last year i spent thanksgiving in the hospital fighting for my life.  this year i celebrated at home with my family.

happy thanksgiving to you and yours.  let’s do this again next year.

mary jessica hammes has been working on my story for babygooroo.com.

it’s finally up.  go over and have a read, even if you think you already know it by heart.

the cleanest i’ve been.  an end to the tears and the in-between years and the troubles i’ve seen?

well, at least for now.

this afternoon i had an appointment with my oncologist to go over my latest pet/ct scan results.  no uptake was noted except for in the thymus, which is expected post-transplant.

i’ll go back for a check-up in three months and if all is well then, i’ll have a ct scan three months after that.

the new office actually called us yesterday afternoon asking to reschedule because someotherdoctor’sofficewhoshallremainnameless did not send the requested files.  apparently we are required to use their super special records request form. 

seems like perhaps they just wanted to get us on the phone so they could hear for themselves that in fact, no, we won’t ever be going back there, and yes, it’s just because we really don’t like them anymore.  um, i mean, “it’s just too far.”

i love my original oncologist, but he’s in northern virginia and that’s finally become a point of contention.  my transplant oncologist, however, is the one who sent me looking for the nearest sand pit, and truth be told, a new oncologist.  i really just could not deal with his callousness, nor step foot into that mcghetto hospital one more time, though i imagine anywhere i’d gone for the transplant i would now loathe.

november 15,  a sunday, i checked into casa doyle for some amazing fun, food and frivolity.  seriously, i could totally live there as the non-participating sister wife.  dude, everyone needs a housewife and my dearest of friends does not disappoint.  there was coffee ready every morning.  we cooked breakfast, went out to lunches, ordered in for fun and made some spectacular dinners.  mostly i just stood there when the spectacular dinners were emerging.  there were two mammas, two nurslings, and (eventually two) very happy daddies with ex-disney girls for wives. 

monday, november 16th through wednesday, november 18th my amazing friend drove me to the pathology lab that does stem cell harvesting.  thursday, november 19th i was admitted here to the bmt (bone marrow transplant) unit.  all bmt units are generally still referred to as such since autologous and donor stem cell transplants are relatively new.  well, new enough not rename the units yet.my havest days were uneventful.  so was my check-in day.then day -5 (11/20) i started high-dose ICE chemo.  that lasted through the weekend and finished up on the early pat of day-2 (11/24).  the days -2 and -1 were mostly fluids and resting, and let me tell you, plenty of barfing.  nasty!

i got my stem cells back on wednesday, november 25, day 0.

we’re at day +3, and it’s saturday, november 28th.  i spiked a high fever last night, as was expected at some point.  i got all of my lines, blood and urine cultures right away.  then i woke up after a few hours of iv antibiotics and needed some benadryl to combat the red man syndrome i was suffering.

so there it is, my life in a nutshell so far.  i’m sure i missed plenty and didn’t talk any about the hospital drama with nugget visiting, but they’ve already beaten me back to a half slumber with the benadryl and reconnected me while i typed.

more to come, i promise!

i’ve spent the better part of today looking for myself, wondering what happened to me, if i might remember, and so that i don’t forget again.  there have just been so many days in such a very long row that i’ve been lost, lost to myself, to my family, my friends, my neighbors, to you.

this afternoon i put in a few more hours working on my office.  i found some of my tools in the garage.  i’d missed calling them mine.  i found spools of ribbon in a cabinet and remembered the christmases, birthdays and weddings i’d gotten them for.  i hung rolls of pretty wrapping paper on freshly painted rods while listening to music i hadn’t heard in far too long.  i heard forgotten memories in long-loved lyrics and found little bits of myself tucked into drawers, hidden away in boxes and slid between the pages of books.

the room isn’t finished and neither am i.  i have so many things to do.  i hear a thousand projects and unanswered thoughts calling my name.  perhaps it’s here, in my own space, that i’ll be able to sort through them all.

i had a pet scan this morning.  it should determine if i am in remission.  it’s unheard results are weighing heavily on my heart and mind.  it’s hard to focus when there’s so much to see through.

i still need help to get through most days, somtimes paralyzed by a fear that hangs on to me like a shadow.  it’s hard to ask for help day after day.  it’s hard to watch myself being consumed or idly slipping away.  but even though i might not be all there, i am still here, waiting, just like you.