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today, nugget and i are at disneyland, the happiest place on earth, with auntie krista, and it is just indeed that.
stitch, pluto and daisy duck welcomed us to the paradise pier hotel this morning. they asked nugget to have breakfast with them tomorrow morning and she happily agreed.
right now, nugget is enjoying high school marching bands and a mickey mouse ice cream sandwich while we wait on castle hub for the new parade, celebrate! a street party, to start.
we met tinker bell and her fairy friend, fawn after lunch. nugget is really looking forward to seeing her fly during fireworks tonight.
we’ll have lots of photos of our celebration to post when we get home, so be sure to check back soon for those!
tomorrow is the day of my, as my friends and i like say, “come to jesus” meeting with my oncologist. nugget and i will be making the trek up to nova and then are spending the night with friends.
i have no idea what the outcome will be from this appointment. maybe i’m done with chemo. maybe not. maybe i’m getting radiation. maybe not. i guess we’ll all find out tomorrow. i’ll be sure to post a quick update from my crackberry once tomorrow evening.
wish me luck. pray for me. chant. do it all, i need whatever i help can get.
a woman i used to work with messaged me on myspace this week. i read it yesterday and it absolutely made my day, which i might add was spectacularly craptastic up until then.
“i started working at magic kingdom back in 1997 and only partially knew who you were. you were always cool to me at town square and spectro and stuff, but we were only acquaintances.i happened upon your page through mikki and started reading your blog, “bits of myself”, and i cannot help being taken by how fucking amazing you are. sorry for the language from someone you do not know, but i can’t think of any other words. i don’t even remember where i started the “bits”, but i backed up to where you found out you had cancer. by the time i got to your final breast feeding with nugget, there were uncontrollable tears streaming down my face at how you kept apologizing to her, for something that you did not ask for.
i don’t know how much all of this means coming from someone you don’t know, but i just had to get this out. i was driving ddct floats when you were at mk with your baby girl, and i saw you two days in a row. knowing how painful it must be, there you stood in the sun, in a tank top, bald…smiling and waving.
i hope i didn’t weird you out with all this, but know that you have touched one more individual’s life. you are the strongest woman that i don’t know.”
i just needed to thank you for that and let you know that your kind words have touched my heart. thank you for reading my blog. and thank you to all of you who continue to do so. i hope you’ll all stay tuned for the exciting conclusion to this chapter of my life.
chemo is kicking my ass this week and i’m still exhausted from traveling. here’s your first installment of vacation photos, though. you’ve been waiting so patiently… sort of. i know it’s been hard. enjoy!
okay, actually eight isn’t enough as i’ve got four more chemo doses to go, but lord in heaven i am soooo over this shit.
i’m fat – newsflash – some people actually gain weight during chemo. thanks for that warning. someone please mail me a mumu because that’s all i’m going to fit in at the end of this.
i’m tired of this nasty taste in my mouth. i mostly drink carbonated beverages now because the bubbles help mask any strange flavors.
i’m exhausted and i can never get a good night’s sleep anymore. last night nugget slept with her grandmamie though, so i slept with prince lunesta.
my face and neck are now turning a lovely shade of red for the first few days post chemo. what makes the red man red? i guess it’s chemo.
the neuropathy is causing me to drop things. most unappreciated was the bowl of chicken tortilla soup in tiny apartment’s dining room/library/office which is oh so pleasantly carpeted in beige.
here’s yesterday’s chemo self-portrait. i think i like this one best because you can’t see my hair. when i look at it i just see me.
you can check out the real world page for the hair update. i shave it every week or so because while it is still growing, only about half of it is. so, no, i don’t want to let that half start growing out into a lovely head of string hair.
here are the latest new house photos. the fireplace mantle and hearth are in, and the hardwood flooring was going in on my last visit.
these two photos are a follow-up to my last post about the shake. i got a lost of questions about that!
tomorrow, nugget and i are off to orlando to visit family and make her first trip to walt disney world. i am beyond excited. she just understands that she’ll get to see minnie’s, er, “mimmie’s” house, and girl loves her some mimmie! mimmie loves you too, nugget!
tuesday, i’m getting my hair cut off. this is what came out last time i washed my hair.
my friend, jocelyne, was over for a playdate with her little man bennett yesterday. jocelyne is a cancer survivor and i couldn’t wait to get her opinion on my hair loss situation. i showed her how easily it comes out now and she said it was probably the right time to get it done.
jocelyne also brought me a bag of chemo fun time treats, which included a hello kitty pez dispenser nugget promptly made her own. and nugget also received the cutest little “my market” fruit and veggie basket. we had a blast and can’t wait for another playdate!
i’m traveling to florida this week for roy’s services and that will give me a chance to focus on something other than my cut-off hair. might as well take advantage of the distraction, right?
the neulasta is causing some discomfort, just like they said it would, mostly in my back and legs. i’ll be asking about that when i call nurse beth today to discuss my travel plans and reschedule my cbc.
all that’s left at our house are a few plants in the garage. the buyers are doing their walk-through today, so i hope that goes well for them. nugget daddy spent a lot of time there yesterday sanding and painting over my spackle jobs. i hope they’re happy to see fresh paint and no nail holes!
nugget daddy has to travel for work today. the good news is he’ll be bringing nugget’s grandmamie back with him. auntie barbara and her boys are going to keep nugget and i entertained today. i’m really looking forward to this playdate!
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