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tomorrow, we visit with the local oncologist and discuss what national cancer center my case will go to for review.  i am terrified.  i do not want tomorrow.  i do not want to be any closer to the hell that is going to rain down on my family for yet a second time.

the past few days i’ve spent with my head in the sand, as far as it will go, coming up for air only when someone insists on asking about tomorrow.

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i’ve also invested a good bit of time in starting my own standup2cancer team.  you can join it here.  our first goal will be to raise $1500 by my 36th birthday on august 15th.  this will be my second birthday spent fighting this disease.

now, i’m asking you, dear reader, to do whatever you can.  joindonate.  buy an awesome t-shirtinvite everyone you know.

i had a PET scan monday afternoon. this evening i got the results from my uncle, since he’s the chief of radiology at the hospital i go to now in richmond. the initial report concludes that the disease is back.

i called my oncologist’s answering service and he called me right away. he’ll be reviewing the scan with his radiologist first thing tomorrow and then we’ll have another call by 11am.

i coincidentally have an appointment with my gp tomorrow for what we thought was a lingering sinus infection. nope, that’s just the cancer giving me the fever.

my uncle is setting me up with an oncologist down here. assuming this is the real deal, i’ll have to start chemo asap. they’re also talking stem cell harvest.

i’m posting this update via crackberry from bed with nugget happily draped across me, asleep, nursing and clutching the other boob in her little fist.

i asked her if she remembered having to stop nursing before. i sobbed and tried my best to reassure her that we will try so very hard to make it back to where we are now.

this is beyond horrifying. i can’t believe we have to go through this again. i can’t believe i have to force my baby girl to stop nursing again. the chemo, that’s nothing.

fuck you, cancer. fuck you very, very much.

nursing at the san diego zoo                                                  photo by candice eley photography, candiceeley.com

nursing on main street while waiting for parade at disneyland

nugget and i spent the past three days celebrating the end of a successful round of chemo and our return to nursing.  disney doesn’t have a button for that, but we still had a fantastic experience.

our sincerest thanks and gratitude to the new parade cast and characters at the paradise pier breakfast. you all made our celebration absolutely magical.

pictures soon, i promise!

 

my sister’s one-day sister-in-law (i just know it!) tagged me in a facebook note, “end of year meme.”  it would have been sooo easy to use the majority of her answers because, dude, it’s like she wrote them just for me!  but, alas, she did not, so i’ve crafted my own responses just for you.

 

  1. what did you do in 2008 that you’d never done before?
    was diagnosed with and treated for cancer
  2.  

  3. did you keep your new year’s resolutions, and will you make more for next year?
    i don’t make them
  4.  

  5. did anyone close to you give birth?
    most recently, the greenes welcomed their twin girls
  6.  

  7. did anyone close to you die?
    i lost an old friend.  he was a great man.
  8.  

  9. what countries did you visit?
    chemoland.  it sucked.
    walt disney world
  10.  

  11. what would you like to have in 2009 that you lacked in 2008?
    energy and hair
  12.  

  13. what date from 2008 will remain etched upon your memory, and why?
    june 12th, it was the last time i nursed my daughter before i started chemo
  14.  

  15. what was your biggest achievement of the year?
    resuming nursing after battling cancer
  16.  

  17. what was your biggest failure?
    having to stop nursing
    yes,  i realize that was beyond my control, but to me it felt like failure.
  18.  

  19. did you suffer illness or injury?
    yes
  20.  

  21. what was the best thing you bought?
    our new house
  22.  

  23. whose behavior merited celebration?
    my mother’s
    my husband’s
    my daughter’s
  24.  

  25. whose behavior made you appalled and depressed?
    northern virginia’s drivers
  26.  

  27. where did most of your money go?
    our new house
  28.  

  29. what did you get really, really, really excited about?
    taking my daughter to disney for the first time
  30.  

  31. what song will always remind you of 2008?
    the hot dog song
  32.  

  33. compared to this time last year, are you:
    happier or sadder?  happier
    thinner or fatter?  fatter
    richer or poorer?  poorer
  34.  

  35. what do you wish you’d done more of?
    crafted more homemade gifts
    visited more friends
    blogged more
    taken more photos and video of my family and friends
  36.  

  37. what do you wish you’d done less of?
    had less cancer
    gained less weight
  38.  

  39. how did you spend christmas?
    at our new house with my husband’s parents, brother, sister-in-law, and my parents, grandparents, aunt & her family and her godparents & their family
  40.  

  41. did you fall in love in 2008?
    every day
  42.  

  43. how many one-night stands?
    (seriously?  this one i have to change to something more mommy blog- friendly)
  44.  
    what changes did you make to “green up” your lifestyle?
    collected more reusable shopping bags and got my mom in the habit of using them, too
    started a compost pile
    chose a tankless hot water heater for the new house
     

  45. what was your favorite tv show?
    lost
  46.  

  47. do you hate anyone now that you didn’t hate this time last year?
    hate?  that’s much too strong of a word.
  48.  

  49. what was the best book you read?
    did i read any books?  i know i started reading anthony bourdain’s the nasty bits, but i can’t even remember if i’ve finished it. 
  50.  

  51. what was your greatest musical discovery?
    steve burns’ and the flaming lips’ steven drozd’s ” i hog the ground”
     
  52.  

  53. what did you want and get?
    to nurse my daughter again
  54.  

  55. what did you want and not get?
    skinnier faster
  56.  

  57. what was your favorite film of this year?
    this is the last question i answered because, honestly, i can’t remember watching any movie in its entirety aside from charlie wilson’s war. so i guess that’s it.  though if i’d had opportunity to watch the x-files: i want to believe, i’m sure that would have beat out charlie wilson.
  58.  

  59. what did you do on your birthday, and how old were you?
    went to my birthday party, 35
  60.  

  61. what one thing would have made your year immeasurably more satisfying?
    having more energy and less nausea after chemo
  62.  

  63. how would you describe your personal fashion concept in 2008?
    chemo casual
  64.  

  65. what kept you sane?
    prozac and ativan
  66.  

  67. which celebrity/public figure did you fancy the most?
    oh, how i love me some brit-brit.  girl is a spectacular disaster!
  68.  

  69. what political issue stirred you the most?
    the presidential election, though that was more of a circus then an issue
  70.  

  71. whom did you miss?
    my friends from orlando
  72.  

  73. who was the best new person you met?
    my chemo nurse, danna
  74.  

  75. tell us a valuable life lesson you learned in 2008:
    this is your life, right now.  this is what you get.  stop preparing for “someday” and start living it the way you want to now.
  76.  

  77. quote a song lyric that sums up your year.
    “it’s a brand new day,  whatcha  waitin’ for?”
  78.  

  79. tag five people to post their answers to this 2008 wrap-up meme. please link back to this blog from yours.
    non-lucid drivel
    the twinkies

    motherhood and cancer
    life with the moonhils
    returnjourney

monday, the pet specialist will read my scans.  i should hear something that day.  i’ll be sure to post as soon as i do.

tonight, nugget and nugget daddy are sleeping in nugget’s big girl bedroom (aka, the guestroom) because mama is radioactive.  this means i get the whole california king bed to myself.  well, myself and the two cats.  i hope they can find some room to squeeze in.  the steroids are doing wonderful things to my physique.  i’ll share with you my lastest self-portrait.

stay puft marshmallow man

to… mor… row… tomorrow!

right now some of you are appreciating that more than others.  some of you are also doing choreography in your chair now.

tomorrow is my pet scan.   it’s at 10 am eastern time, at the hospital for which my uncle is chief of radiology.  he’ll be having his best pet specialist read it and i’m sure we’ll have the results as soon as he can get them.

so in the meantime, i’ll return you to your regularly scheduled blog reading and holiday preparations as a distraction.   i do hope you’re enjoying some egg nog and the occasional cookie, or three… or four.

nursing is continuing to go well.  nugget’s taken to exclaiming, “mama, beebies!” when she’s inclined to nurse.

 

here’s the big news:  as long as my next pet scan is clean (like the last one was) then i’m done.  no more chemo, no radiation.  done.

what this means for us right now is nugget can nurse again.  amen!

 

a woman i used to work with messaged me on myspace this week.  i read it yesterday and it absolutely made my day, which i might add was spectacularly craptastic up until then.


“i started working at magic kingdom back in 1997 and only partially knew who you were. you were always cool to me at town square and spectro and stuff, but we were only acquaintances.

i happened upon your page through mikki and started reading your blog, “bits of myself”, and i cannot help being taken by how fucking amazing you are. sorry for the language from someone you do not know, but i can’t think of any other words. i don’t even remember where i started the “bits”, but i backed up to where you found out you had cancer. by the time i got to your final breast feeding with nugget, there were uncontrollable tears streaming down my face at how you kept apologizing to her, for something that you did not ask for.

i don’t know how much all of this means coming from someone you don’t know, but i just had to get this out. i was driving ddct floats when you were at mk with your baby girl, and i saw you two days in a row. knowing how painful it must be, there you stood in the sun, in a tank top, bald…smiling and waving.

i hope i didn’t weird you out with all this, but know that you have touched one more individual’s life. you are the strongest woman that i don’t know.”



i just needed to thank you for that and let you know that your kind words have touched my heart.  thank you for reading my blog.  and thank you to all of you who continue to do so.  i hope you’ll all stay tuned for the exciting conclusion to this chapter of my life.

SU2C
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