well, i never made it to the movies. i didn’t think i’d be able to keep my eyes open through it! the vicodin and ativan are keeping me drowsy and just a little loopy.
i have two incisions from the port insertion. both were completely covered with large steri-strips, which i’ve had before with no problem. yesterday, the skin at the edges of the strips started blistering, peeling and oozing. my mom, an rn, decided i really needed to call my surgeon. i did and thankfully he returned my call quickly. he said i needed to go ahead and take off the strips. so, while he was still on the phone i began the torturous task.
as the strips came off, so did the scabs over my incisions and the blistered patches of skin (and then some). holy hell, that hurt! the larger incision bled. when i peeled the last strip all the way off, it was still attached to a flap of tearing skin. i grabbed my eyebrow scissors and snip-snipped. ick. nugget daddy ran to the store for some dressing supplies
by this afternoon it had finally stopped oozing, but it’s still nasty and painful.
tomorrow is the come-to-jesus meeting with the oncologist. i’m really, really nervous. we’ll find out the results of the bone marrow biopsy and pet scan. we’ll know what stage it is and what nodes are affected. he’ll tell us what treatment he thinks will be best, when i’ll start and how long it will last.
i can feel myself shutting down more and more with each tick of the clock closer to the appointment time. nugget has been nursing like crazy today. my precious baby girl… i’m so scared for her.










6 comments
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June 10, 2008 at 10:53 pm
bits of myself
did i say, “like fish in a barrel,” or what?!
June 10, 2008 at 8:12 pm
SC
TA
June 4, 2008 at 10:58 am
scatteredonapage
Glad mama is back…good to see her yesterday and yourself…and giggles too (I was ‘VERY’ happy) to see she was looking like the seashore in her beautiful dress for Auntie B. I will see if I am able to come for a visit this afternoon if you are up for it. (good to see nugget daddy as well – I just know he was very busy trying to work!)
June 3, 2008 at 10:41 am
Heather
I am home and ready to zoom over if you still want to! Been thinking about you all morning.
June 3, 2008 at 7:48 am
Barbara
Good to see that you are writing down….and partially at times singing your thoughts. I can hear your voice actually as I scroll through and read your pages.
I will come see you today afterwards my friend. I am truly sorry today and the days that have lead up to this appoint have had to happen.
Remember all of us will be here waiting to read from you later, when you decide to type some words to us ~ you have a following now….who knew….
Donnez de grandes étreintes aux petits rires et un baiser de la Tante B. … comme vous tenez sa fin aujourd’hui et sentez ses cheveux doux.
aimez à mon ami,
xoxo, Barbara
June 2, 2008 at 8:08 pm
Jeni
I’m so glad your mom was there! I’ve heard of that happening after steri’s have been used prior without an issue. That first time was basically an introduction and poof…reaction. Crazy. We’ve started using a liquid closure called ‘Dermabond’ on our port patients…good stuff. Sorry…random thought. (If you should want some to keep on hand for anything…let me know…) Anyhoo…lots of love to you!!!
xoxoxo